Archive | Kim

Trumpcare vs Obamacare? Just CARE

March 1, 2017

I posted this article from Cure magazine on whaddaconcept’s Facebook page, but I think it’s important enough that it should be posted here as well. I am not trying to take sides, but I am trying to explain how crucial it is for EVERYONE to get health care … not access to health care, but actual health care. All access means is that it is available. Even if it’s available, it’s worthless if it’s too expensive to buy.

I shake my head every time I hear someone say, or see someone write, that they shouldn’t have to pay for someone else’s health care. Listen clearly, YOU ARE NOT PAYING FOR SOMEONE ELSE’S HEALTH CARE. Just like any other insurance, you are, basically, paying to insure you are okay if something happens. You may be healthy now, so you ask yourself, “Why should I have to get health insurance?” I was healthy — never been admitted to the hospital, never broke a bone, no chronic issues, no medications, relatively young — until I was in my mid to late 40’s. Keep reading

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A Few Hard Truths

February 6, 2017

This is a hard post to write for a number of reasons….

1. When I started this blog, I promised myself that I would not insert politics into it. I just felt that it was necessary to focus on healthcare issues, survival, quality of life. I now realize that expecting to discuss healthcare without addressing politics is a little like expecting to take care of a baby without cleaning up poop. Political motivations and decisions impact all aspects of healthcare.

2. While I’ve always tried to be 100% honest about what’s happening to me during this journey, for the most part, I’ve not put things into dollars and cents.  I grew up in the Midwest … discussing finances publicly isn’t something we do. In this instance, breaking down my financial reality, as uncomfortable as that is, is important.

3. The impetus for this post is a result of my concern over the abhorrent behavior of people that I loved, respected, and thought I knew. Keep reading

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Happy Holidays!

December 25, 2016

Image result for Today I Choose JoyI’ve always been a sentimental person, but as I get older and struggle more and more with my health, traditions have become something of an obsession. This time of year takes me back to my childhood. The last day of school before break, snowball fights with friends, smells of mom’s baking, decorations, opening presents, Christmas Eve service and even the occasional hockey game with some tipsy relatives.

I remember my mother preparing holiday dinner for family and friends, including, if I’m completely honest, a few people she could barely tolerate. No matter what, all were welcome and all were treated with respect. When you came to her home, you were included, you were made comfortable, and you were fed … whether you were liked or not.

My mother was and is an atheist.  The holidays were more about family, tradition, and being together than they were about religious affiliation or celebration. Keep reading

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Protocol is Great … Until it’s Not

July 14, 2016

For the purpose of this post, I define “protocol” as a plan or procedure for diagnosis and medical treatment.

I’ll admit, after four years, I am losing patience with those in the medical community who try to fit us all into a single box. Particularly when they stop using protocol as a baseline for diagnosis or treatment and it degrades into dogmatic ideology. Don’t get me wrong, protocol is great and has been proven effective (or it wouldn’t be protocol). Most of the time, it serves the patient, and the medical professional, well. However, if a treatment doesn’t work or the issue isn’t resolved, IT IS TIME TO TRY SOMETHING DIFFERENT. Sometimes, when you hear hoofbeats, it may really be zebras rather than horses.

Today, I read an article that immediately PISSED ME OFF because it shows how much we are lumped together without recognizing that there will be exceptions to the rules and, therefore, a need, when necessary, to think outside the box. Keep reading

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Advice for Dealing with Financial Burden … Cure Today Magazine

January 24, 2016

When I was first diagnosed, I thought “Thank God, I have insurance!” This was the first time after years of being a consultant with very spotty insurance coverage that I had solid health insurance. In many ways, I was fortunate … I don’t know what I would have done without it because it opened many doors for me very quickly. However, what I didn’t realize was that I had several thousands of dollars in deductibles and out-of-pocket costs annually (and, believe me, my employer was paying a sizable amount each month for that insurance). I also had a $25.00 co-pay. Again, what I didn’t realize was that the co-pay was for a doctor’s visit only. Imagine my surprise when I got a call from my oncologist’s billing department, just days from my first chemo treatment, informing me that my co-pay was well over $300.00 per treatment AND it was due at the time of treatment! Keep reading

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Reflections, Revelations, and Ridiculousness

January 16, 2016

This post was originally started prior to  Thanksgiving, but unexpected health problems delayed the editing and posting of it.

It’s Holiday Season. Whether you agree with the principles or not, whether you celebrate or not,  it’s a good time for reflection. A cancer diagnosis … and the subsequent treatments … as well as the death of friends, has forced me to be more contemplative. I reflect on my life, my choices, and what is really important to me.

I know I’m going to die and not in the “we’re all going to die some time in the future” way. That may be true, and we are all “terminal” as one of my doctors philosophized when he was asked about the implications of my metastatic diagnosis, but most of us have the luxury of at least thinking that death is a far off notion. Some theoretical concept to prepare for, but after the grandchildren have grown. Keep reading

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You’re not a Doctor

December 8, 2015

One of the many reasons I started this website was because throughout my own treatment I discovered “simple fixes” to problems AFTER they happened. I missed opportunities that could have made my life a lot easier. I struggled to retain some normalcy during something that no one should have to go through … all the while encountering people who felt they had the right to make decisions for me. I also discovered that I had difficulty telling people no…even when they had absolutely no right or knowledge to make demands. I spoke to others in similar situations and I heard the same thing over and over … “I wish I would have known…”

Thank God, I was introduced to a woman who became my mentor and refused to allow me to acquiesce to family and friends or even doctors, much less aggressive acquaintances. During consults and after diagnoses, she filtered everyone else out and asked me, “What do you want?” and would not accept a non-answer or easy submission. Keep reading

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